To Live Gratitude is to Touch Heaven (Gaertner)
October 30, 2009

It has been a long and strange week.  An odd assortment of happenings and circumstances have occurred and my emotions are all mixed up and jumbled.  Kenneth had a bleed this week – always sparking worry for me.  Not because of the medical issue – I have dealt with hemophilia and hemorrhages all my life.  I just never know how Kenneth is going to do with it.  He hates needles and doctors and doesn’t handle pain very well at all.  He actually cooperated quite well with keeping ice and an ace-wrap on it Monday night.  He was still sleeping when I left for work on Tuesday and I was a little stressed because I had a mandatory meeting in the middle of the day.  Of course, he calls me just as the meeting starts.  I texted and learned that his knee was worse and was going to need an infusion.  If you are not familiar with hemophilia, or what an infusion is – a quick overview.  His blood is missing a factor that causes it to clot when there has been trauma to the body.  So, where most of us might bump into something and maybe have a red mark or scrape, Kenneth will have a massive bruise.  The more serious the trauma to soft tissue or organs, the more significant the “bleed”.  A minor bleed can be treated with cold and compression.  Moderate to severe hemorrhages require Kenneth to have concentrated Factor IX infused intraveneously – usually once or twice a day for 1 – 4 days.  So, the kid is already in pain, then has to be jabbed, not just into his arm or soft tissue, but directly into his vein.  He happens to have the misfortune to have small, mobile veins.  So, if the nurse is not exceptionally skilled, he is hard to “hit”.  I once watched as a veteran nurse stick him 6 times and still was never able to succeed.

So, one can’t really blame him for doing everything in his power to avoid an infusion.  Luckily, over the last year he has matured, learned to trust the nurses at clinic, and been more responsible about managing his disorder.  So, even though I had to take off work and bring him to clinic, he was not only cooperative, but told me he drank 4 glasss of orange juice to help hydrate himself and make his veins an easier target.  It was a bit nerve wracking balancing work and clinic, preparing the concentrate, getting Kenneth in and out of the house on crutches in the rain.  Not the worse case scenario, and I was still very tired at the end of the day.

That evening, I received a phone call from my ex.  He wanted to let me know that the mother of a friend of ours had passed away.  I know, it seems a rather benign situation – yet it put me into a bit of an emotional tail-spin.  Having experienced the deaths of 3 siblings and both parents – I am highly empathetic to others’ losses.  It can also bring a lot of my own grief to the surface.  The thing that caught me off guard though, was a wave – no more of a surge – of emotions  surrounding the loss of friends that occurred after the divorce.  This friend in particular, and his wife, were people I would spend time with nearly every weekend and sometimes during the week.  We would gather for baseball games, Mizzou basketball games, political debates.  We had dinner and went to parties and movies together regularly.  They were with me during the illnesses and deaths of most of my family members.  My dad passed away on New Years Eve and this friend joined my family that night as we pulled together and toasted the passing of a complex man and a difficult year.  I believed I was as close to this person as friends could be.  Yes, I met him through my ex – and they had been friends for a long time before I met them.  I thought, though, that we had a friendship that extended beyond the confined of mine and my exes relationship.  Don’t get me wrong, this is not the only friendship and relationship I have lost in the chaos of divorce, death and raising 4 traumatized children.  It’s just this was probably the closest and the event of his mom passing away brought all of this crashing in on me.  I was overwhelmed by sadness for his loss, missing this friendship more than I had realized I did, and a high level of awareness of the many others that have disappeared from my life.  It is hard to say if these relationships have dissapated because of choosing which of us to stay with in the aftermath of the divorce, or because of the drastic change in lifestyle I under went when the kids came into my life.

This is by no means meant to place blame.  It just is.  And it happened to hit hard this week how much I miss some of these friends.

Wednesday was parent-teacher conferences with Megan’s teachers.  School is always a hot-button for all of my kids.  I have described in earlier posts how Kenneth has struggled with the authoritarian environment common to all schools.  The girls, also having Attachment Disorder, have issues as well.  They manifest a bit differently, but the end result is the same – unhappy kids, unhappy teachers, unhappy mom.  If Megan likes a teacher, or if there are minimal requirements (art, music) – she is typically a star performer.  Subjects that require her to put forth effort, do homework and pay attention – not so much.  She starts high school next year, and in order for her to get into one that is safe and will provide her with what she needs to go to college, she needs to really kick into gear.  So, I was absolutely dismayed to see that she had C’s and a D in most of her core subjects.  The good new is, so was she.  She actually teared up – where in the past she would just brush it off and make a joke about it.  She sat with me and participated in discussions with the teachers about what she can do to bring her grades up.  The teachers were great – reinforcing the difference they see in the effort she is puting forth and encouraging her that if she follows through with their suggestions she will easily be an A-B student.  So, another night of emotional ups and downs.  In the end, I felt good ab0ut the conferences and Megan’s performance.  And, I was exhausted when I got home.

Then, yesterday, after work, I brought my 18 year old cat to the vet to be put to sleep.  I have had her for 17 years – she was given to me by my ex when we first started dating.  I named her Shadow – as in Me and My Shadow – she used to follow me everywhere.  We had to put our dog down just a couple of months ago and every death dredges up the kids’ fears and unresolved issues.  Patsy, who has been on rocky emotional terrain already took it especially hard.  She wanted to be with Shadow when the procedure was administered.  Once Shad went to sleep, Pasty began howling and bawling.  Now mind you, she had not interacted with this cat for weeks, maybe months – and she was often mean to her.  I found myself feeling so angry and resentful toward Patsy that I could hardly bear it.

This morning I was so tired and emotionally drained that I considered taking the day off of work – but since the kids were off school I realized it would actually be less stressful to go to the office.  Luckily I had no meetings and it was a quiet day.  After work I finally made it to the gym – the first time all week.  Thankfully that did wonders for my state of mind – along with the fact that it is finally Friday and I now have the weekend to recuperate. 

I have been working to be aware of all of life as a gift and to live in gratitude.  It is an interesting exercise to open up to sadness, resentment, aggrevation and emotional fatigue AND do so in gratitude.  It feels counter-intuitive and contradictory.  I am sure it will feel more natural as I do it more often.  Even now, though, it is a much less desparaging experience than to lamblast myself with guilt, shame, and self reproach.

It is a new and wonderful experience to treat myself with the same compassion, patience and gentleness as I do with the kids.  I highly recommend everyone give it a try.

copyrighted 10/30/09